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Severely Handicapped cousin in UAB hospital now

NEED HELP. MY BROTHER, Jerry Farris IS BEING NEGLECTED THE CARE THAT HE NEEDS AT UAB HOSPITAL. HE IS SUFFERING FOR NO REASON. PLEASE SHARE THIS WITH EVERYONE. THE PUBLIC NEEDS TO KNOW HOW THEY ARE TREATING HIM. During surgery the surgeon or anesthesia damaged his airway causing massive bleeding and an emergency tracheostomy was done so he could breathe. That saved his life and we are thankful. Since then he has been getting steadily worse because of the following reasons. The patient, Jerry Farris has muscular dystrophy. He has been hospitalized over 100 times with respiratory issues like pneumonia, congestion etc. Every time this has happened there are certain things that we as the caregivers for him has been able to do to help him. Currently, UAB Hospital is emphatically denying us the resources we need to save his life and get him better. We have tried suggestions for alternatives but nothing is working. We know what he needs and he knows what he needs but the hospital continues to deny us the things that he needs. I have kept logs of names, times and things that Jerry has told them, asked them and pleaded with them. Here is what it boils down to. Jerry cannot move his arms, legs, head, etc. He is very smart and would normally be able to talk and explain things but now with the tracheotomy we have to point to letters on a board while he blinks to communicate. I have been able to read his lips better than others. My mother cannot read his lips and when he needs something immediately she is unable to understand what he is saying. Doctors come in and give updates but do not use the board to here wha he has to say. They tell him they dont have time. He needs a more firm bed. Up until September of this year we have always been able to keep him on an ER Stretcher bed for him to be able to breath. The bed they have him on and the one they offered as an alternative he sank into putting pressure on his lungs and prevents him from being able to breathe properly and more importantly prevents him from coughing secretions up. The UAB Hospital Administration refuses to allow us access to the ER Stretcher that we need. Also, they will not allow my mother who is his primary live in caregiver and myself in at the same time to assist him in coughing the way we always have to save his life. They did allow us a 2 hour window to come in together and try to help him cough but the nurses were trying to get vitals during this time. Respiratory took too much time to get his trach collar hooked up. Then he had to get cleaned up pooping. We barely got him sat up and tried to cough one time and they told me I had to leave. He needs to be able to cough when the secretions in his airway are in the right place to make it effective. It cant be on a schedule. And he does not have the muscles to sit up on his own. Nor does he have the muscles to cough. Thats why my mother has to do a modified quad cough to help him. Without the Stretcher bed that he needs and without allowing my mom and I to work together he is getting worse. Those secretions are blocking his airway forcing him to need suction. But now he is needing suction so often because of the aforementioned problems his airway is getting raw from the suction tube and they are denying him suction. He feels like he suffocating and drowning because he cant cough up anything and they wont suction and tell him he is fine. I believe that if we dont get these basic things he will slowly get worse and die. Secretions that dont come up will clog his airway and or go into his lungs making it even more difficult to cough. I have talked with all the people I know to talk to here at the hospital. I dont know what else to do other than trying legal advice. I have most recently been speaking to Amanda Chambers in nursing administration. She acts like she is helping but her refusal to allow the bed and access to him when he needs to cough is neglectful and not in the best interest of his safety, well-being and care and something needs to be done before it is too late. PLEASE HELP.
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ID
#2355378 Review #2355378 is a subjective opinion of poster.
Pros
  • Usually good care
Cons
  • Some employees not interested in helping patients
  • Poor quality care
Preferred solution
Take care of my cousin while he is in UAB hospital.